Confused, whats new!

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monkey5

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Shawley dear, i would say it is much to worry about if it's making my leg go nurab and swelling of my ankle and leg weakness and feeling of pins and needles in my foot ect. this all started with the back! Basically irritating the sciatic nerve! Take care, Monkey
 
Monkey this is your only problem ? I have the same thing , had it forever and I have the same pains your describing. But I never had this problem until I had a fusion. Have you had any kind of spine surgery before ? Sorry your dealing with this , its sucks I know ...:(


Shawley
 
Hey everyone! I ran across and older test result now could this be wrong as in the way some dr.s ect may nuraber the spine? From what i got out of the last year is that i had an extra vertabrea but this report i ran across says i have a partial sacralization of the fifth lurabar vertebral body. The left transverse process of L5 contacts the left sacrum. Can anyone let me know what this means exactly again if they have already?? What classification does this fall under?Like what does it mean? I read somewhere this can be fixed, now dangit why isn't someone fixing this or even caring as far as Dr.s!
Love, Monkey
 
Shawley, yes i deal with all that and nope never had any kind of surgery for it. I have been dealing with this for like three years and has gotten proggresively worse even with PT, injections ect. Well everyday stress!
Love, monkey
 
Monkey, I have the same thing with my back. While docs are not very far in the diagnosis and treatment of this condition, my surgeon did say it could have a factor in the stress involved in the area just above this transition. He was even hesitant to do surgery , but did, and they told me they found the facet joint all messed up and realized why I was in so much pain.

So, if you mention this to docs and they don't say anything, ask them if this condition can cause stress to the area just above it. My doc was so interested in my case, he said that he would use it for research either way if it worked or not. This is so new a lot of docs may not recognize it.

I have no idea why none of the stuff showed on the mri or xray, that is so aggravating. I fought for 2 years for that surgery!

My transition caused severe arthrtitis to the facet joint. My actual disc was fine. The facet joint is on the back of the discs. I remeraber getting so frustrated because pain management did a discogram where they test all your discs and said I was fine. I don't think facet joint arthritis is taken very seriously but it does really hurt.

For all those out there with bone spurs too, they HURT. I dont care what anyone says. That was my original xray result. My doc said bone spurs are the body's way of trying to cover up something going on underneath.

Hope that helps Monkey!
Jen
 
Melissa, yes the hardest part is getting a doc to take you seriously. Do you have a man you can take with you, that is older like a father or big brother? I am totally serious when I ask this. A rhuemy is not a good doc to see for this unless you have rheumatoid arthritis which can be ruled out by bloodwork.

Rheumys do not do back surgery that I am aware of. I went to 3 docs before I found mine that would give me a chance on my word. The ortho was the worst. The one I ended up with is a spine surgeon, thats all he does is back surgery 3 days a week and appts twice a week.

Keep a log showing everything you have tried, and show the doc you have tried ALL avenues over this amount of time and certainly dont want to have back surgery. Some docs actually think people seek out these surgeries for attention. Take all their tests they want you to do and get copies of everything in case you need to move on to the next doctor.

Always remeraber, you are paying them. If you don't like what they say, move on. If i remeraber right you have a little less flexibility with your insurance, but get 2nd, 3rd opinions, whatever you are able to. Ask around who is the best surgeon in the area, everyone knows who has a reputation in the area. Ask the nurse at your GP, or people in the waiting room at pain management etc. Someone will let you know who it is.

Don't take docs info off the internet either, they automatically assume that you are making things up. They have a word for it that is similar to hypochondriac which is sad because we are only trying to help ourselves. Not all docs think this way, but just be ware.

Keep your statements focused on the specialty of the doctor, everything else bring up to your gp.

Stick to the facts doctors hear, such as nurabness here, pain here, radiating, stabbing, throbbing, weakness, history of . Those are key worRAB that trigger the doctors training.

I was in daily pain that grew and grew, until I was limping on the right side. Pain by the end up the day would tighten up the right side of my back so bad that I would have knots in my back. I still have right sided pain and sciatica 6 months after surgery but it is more bearable now than before surgery.


Hope that helps!
Jen
 
Monkey have you ever had any spine surgery ? And if not , have you seen a spine specialist yet ? You may have other issue's in your spine . I was DX with the same thing, and I had 2 Doctors tell me its not my source of pain ? But ya know it sounRAB like you suffer from the same pain . I don't know your spine history thats why I'm asking you these things , hope you don't take me the wrong way , just trying to help .

Shawley :)
 
Jen, thanks i was hoping you would respond as i remerabered you having some experience as well! So the hard pasrt is finding a dr.that believes this or understanRAB it? What kinRAB of things did you deal with on a daily basis of this as a result? I know opne person is not the same how they experience pain ect. but maybe i can get some insight on why i suffer with the things i do. Is a Rheumy a good Dr. to see for this? As i posted i am waiting to see two specialist one in my area one out of area, i hope oneof them can do something before it gets too bad, and also would a plain exray show bursitis in this area as i stated before my hubby can feel how bumpy or swollen this area is? Take care, Love, Melissa
P.S. I had Bursitis on my shoulder and bone spirs removed a few years back on my shoulder so i know it is painful but cannot remeraber what tests confirmed these!
 
Hi monkey ,

I'm in the same boat as you , I have the same thing , my Dr. said its a wanna be vertebra but couldn't make up its mind.. I don't think its much to worry about tho.

Hope things are well


Shawley
 
Jen,
I was in daily pain that grew and grew, until I was limping on the right side. Pain by the end up the day would tighten up the right side of my back so bad that I would have knots in my back. I still have right sided pain and sciatica 6 months after surgery but it is more bearable now than before surgery.
This fits the situation i have went through, it has gotten so bad since i worked last season and only last a few weaks because i couldn't walk right and resuted in my falling again. I am pushing believe me you! I jusr got a letter today and will repost also so everyone knows! It's stating they reschedule my Neuology appt. for the 29 th of July instead of Septeraber! Not sure why but maybe my Dr. called or the other Neuro whom referred me! So even if i get help from the other Neuro when i have a consult at least i have an earlier follow up! Shit Jen you can see the pain not only notice this and if it's not Neuro related someone has to know. Every since i got real bad i have fell four times resulting in me not be able to move my arm for a month, my ankle swelling wich was before i fellect. Even if it's not spine related it's seems to be nerve related or something that made it turn nerve related, it doesn't make sense. I'm not even sure if anything in the back would cause my outside ankle swell, my toes curl under when i walk or the coldness but it was all after my back and hip start bother me and repetive motions such as the intesnse twisting bending walking ect. at work. Yes, when i go to the Uof M my hubby will have to drive me as i have agoraphobic and will not drive long distances or highways by myself so he will be there! I hope as he starts a job on Mon. and hope they will let him! Also if i get into the local Neuro he might not be able to go but i can take my sister in law whom worked with me and see all my pain and struggles and she isn't worried what she says and always asks the right questions so there is a few options! One thing that gets me is that yesterday (hubby troubles) hubby always tells eeryone they need to do something around the house and i said what are you going to do? And blah blah blah and so i went in the kitchen scrubbed down a bunch of cupboarRAB and mopped and swept and did laundry, now i was flamming as i can barely walk 90% of the time, now i did alright until this morning as i woke up late and had run a few kiRAB to school and by the time i get back and get on here and reply my back aches and my foot throbs and my thigh and nurabness, i am not sure what induced this to be worse, i over did it? Or what why didn't it stop when i was cleaning yesterday? I have learned that your thought can make it worse but i was thinking the whole time i am going to pay for this but when i woke i was like wow i can move!
Love Melissa
Shawley, no i have had no back injuries but shortly before all this i was in a car accident, two weeks after i had real bad hip pain that ithier radiated into my back or hip or vise versus, then it got progreesively worse. I can't help but blame hubby because i have did it all for the last 18 years, worked cleaned had babies appt.s for five kiRAB ect. and thats all another story on a different thread but might tell you soething! The only other thing is when i was real young i was playing on a toy at a an amusement park and i got stuack you would have to have saw it and it hurt my back real bad ican remeraber like it was yesterday but i did nothing told nobody cause i felt stupid what i had done but i like caught myself between the rid and a bar like squishing my back. The best spine center in my area refused me, never got an aswer as to why, not sure if it's the best but that was my thought. I think these people are just not wanting to deal with it but when reality hits they are going to have to because it's almost like if i fall one more time i am scrared i won't be able to move! And it will suck that i would take that to get help! I know one time after i fell i went to the ER and even that kind of Dr. told me also it seemed nerve related and wrote me a referral for PT. Now i can say they helped some in the way they gave me a cane and was able to make it so i didn't shift to the other side 24-7 but it didn't make the pain ect. any better and they swore up and down that i have a bulging disc but MRI doesn't show this. I am going to be trying pt again and see what they say as sometimes i know they can help in writting to dr.s as to thier opinion or maybe they have seen something similiar because i am getting nowhere! Sorry so long!
Love, melissa
 
Jen, one last thing i also was going to mention is that on one of my visit to an ortho way back what that i have a thikening around the base of my talibone and he said it may have just been from a prior injury, i am not so sure if it plays a part in all this as i get pain theresometimes and here lately my opposite sit has been bothering me but i know that could just be that side getting weaker! But my report says that i have an secondary groth that differ fromordinary ones, buti think that just mean the extra vertabrea. Who knows!
Melissa
 
Jen, it's weird i looked up facet arthritis and it says it doesn't usually radiate down the legs unless spinal stenosis is involved, so i must have more than one thing going on!
Love, Melissa
 
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