I'm so sorry you are feeling so bad! I have gone through the same experience. Every aspect of my life was effected. It is so hard to not know what you are fighting and therefore how to fight it! I have Neurologic Lyme disease. Several years ago I was diagnosed with Fibromyalgia with a moderate ANA. I was tested 2x for Lupus and spent 2 years having MRI's every 6 months for MS. I had/have just about every symptom on your list! Regarding Lyme tests, you really need a lyme literate LLMD doctor to make a decision based on history and exposure also any postive protein bands you may have on your test. Your test can be negative and you still can have Lyme especially if you have had it a long time (Latent Lyme disease). Also I have Hypothyroidism. A thyroid condition even slightly high or low could account for some of your symptoms, like hair loss, fatigue, sleep issues, muscle pain and restlessness. I also have TMJ and restless leg syndrome. The specialist I see in NYC is the co-founder of ILADS (International Lyme and Associated Diseases) which is the CDC's opposite in the world of Lyme. He feels that Fibromyalgia is a red flag to something else like Lyme or Lupus. If you get a chance read my other threads for more info. Try to keep your social relationships up for support, and exercise really may help even if its just daily stretches. I also found diet changes helpful like cutting out most of the dairy(made my muscles hurt) and gluten (I have digestive and absorption problems) and sugar(low blood sugar can make you feel awful). I did a 3 month exclusion diet to find my triggers now I try to have protein at every meal to keep my blood sugar even. Take care!
