S
Sherri T
Guest
I have spent nearly 2 years trying to find out what is wrong with me. What started as painful intercourse advanced to AUB (endometriosis was removed). After treating my endometriosis I found that my pain was isolated to my bladder (I no longer received bladder urges though no incontinence issues). No signs of IC. Then I lost control of the bladder, then bowels, then legs. My symptoms varied from pain feeling like my legs were lit on fire to my bone marrow splitting apart to numbness in the legs. I also had issues with hands and feet turning blue, chest pain, inexplicable fevers, increased bruising, and an inability to fight off infections. My muscles in the legs have atropied despite my work being very exercise intensive (with restraining animals in excess of 200lbs).
MRI's of the spine were clean excluding one area of decreased nerve signal (a neurosurgeon thought it might be a cyst but the myelogram was clean). No signs of MS plaques and evoked potentials were normal. Lymes disease testing was negative.
So on to the positives. My ANA was positive homogeneous pattern 1/320 titer. CK was 311 IU/L. But my sed rate was 7 and SS-A IgG and SS-B IgG Autoantibodies were negative. WBC was 5.6 and lymphocytes were slightly elevated and granulocytes were slightly decreased. All other cbc results were normal.
I know that my blood results do not scream lupus but at this point I am wondering if I should be consulting a rheumatologist. My neurologist doesn't want to make a call of lupus, she would like me to consult with my PCP (he is 2 hours from my home so I would prefer to see a local specialist to make the call if it is indicative of lupus). My CSF has been sent to the Mayo Clinic for testing and I should hear back in 2 weeks or so. In the interim I am curious if I am right in considering these test results suspicious of lupus considering my symptoms.
Any input would be appreciated
MRI's of the spine were clean excluding one area of decreased nerve signal (a neurosurgeon thought it might be a cyst but the myelogram was clean). No signs of MS plaques and evoked potentials were normal. Lymes disease testing was negative.
So on to the positives. My ANA was positive homogeneous pattern 1/320 titer. CK was 311 IU/L. But my sed rate was 7 and SS-A IgG and SS-B IgG Autoantibodies were negative. WBC was 5.6 and lymphocytes were slightly elevated and granulocytes were slightly decreased. All other cbc results were normal.
I know that my blood results do not scream lupus but at this point I am wondering if I should be consulting a rheumatologist. My neurologist doesn't want to make a call of lupus, she would like me to consult with my PCP (he is 2 hours from my home so I would prefer to see a local specialist to make the call if it is indicative of lupus). My CSF has been sent to the Mayo Clinic for testing and I should hear back in 2 weeks or so. In the interim I am curious if I am right in considering these test results suspicious of lupus considering my symptoms.
Any input would be appreciated