About done with this illness

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precious49

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Hello Lisa,
God can heal you and we just need to pray that your healing will be soon. What time of the day would be good for you and I to pray. You name the time and day and I will do it with you. I'm so sorry that you're feeling so bad. It makes it really hard when food seems to be the enemy. I know how you feel. I'm thankful that so far as long as I stay away from Lactose I really can eat alot of things. What have you tryed eating because it sounRAB like you're not getting enough?
And you're right you shouldn't have to suffer and I just pray right now that God will touch you and make you feel whole. And thank you for your prayers because I know that God wants His Children to live the best life they can for Him. And when we are all healthy, we need to remeraber how we felt so that we can help others and so that we don't get so busy with life that we forget to give Him the Praise for what He's Done For Us.
I pray that you have a good night. precious49 God Bless You and Yours Today and EveryDay:angel:
 
TEdwarRAB83,
You are awesome. Praying for Elisa123--when I read that I was so blessed. I was telling her that I think we need to pick a time that we can pray together for her. Just let me know if it would be possible.
I really pray that you will have peace about this test and that God will protect you during it.
I really think that you should try the Aciphex--I have done so well on it and have had no side effects.
I know that carbonated drinks are not good for us--But--I do love my sam's cola;) and it helps with my nausea.
I'm having 3 Drs. appointments this week. Fun:confused:Tomorrow I see a liver specialist--my liver enzymes are high. Wed.--colonoscopy, oh boy, but I've had so many, it's no big deal to me Fri.--CT Scan-having a bad pain just above my belly button about an hour after I eat. To be feeling half way good now--I sure am falling apart--I'm just Praising God cause' I know that He will be there with me and I have no fear. Have a good day tomorrow my Sister in Christ. precious49 God Bless You and Yours Today and EveryDay
 
Good Morning Chantal,
I saw the liver specialist yesterday and he said that I definitly have a "fatty liver" and called it Non-Alcoholic Fatty Liver. He said it could be from all the medications that I've been on in the past---and there's been alot because of the chronic illness that no Dr. can give a diagnosis so they would say try this medication and like a durabie--I would--He said to only take the med's that I truly need and that's what I've already done. And he said that genetics plays a big part. Weight is also an issue--I only weigh 120lbs. but I'm just
5'1" but I carry all my weight around my middle--I don't have much of a waist or butt and my legs have always been skinny--My husband calls me chicken legs:)and it's true--but I just Praise God that I have legs.
My colonoscopy is tomorrow and today will be the worst of it. I've had so many that it's no big deal. The prep is called HalfLytely & Bisacodyl tablets--I've never used this prep before--it's new-I've always used CoLytely or GoLytely--you have to drink a gallon with them--This new one is 2 tablets and half as much of the liquid--I will let you know how it is--the bad thing always before is that your butt is so raw by the end that it kills you. I always start rubbing mentholatum there after each BM and that really helps. By the end the mentholtum burns a little but believe me--it feels better than being so raw. Believe me, it's one of the easiest tests--don't be concerned--they always give me Versed and Demerol--and I'm out like a light. I have never felt a thing. Actually, I feel the very best after the procedure because my colon feels so good until I start eating again. It's like when you get your teeth cleaned and you don't want to eat and get them dirty. Don't get me wrong--I love to eat good stuff but if I didn't have to eat to survive I think I would feel better. If you take any aspirin products that are not absolutely necessary--I would get off them now. Please don't be afraid--I pray that God will protect you and give your Dr. the skill he neeRAB. I've always been so out of it before they take me in that I truly don't know what the procedure is like but I know that they go as far in as they can BUT you don't feel a thing. If you are nervous just tell them as soon as you get there and I bet they will give you something to calm you. You will be fine In The Name of Jesus. precious49 God Bless You and Yours Today and EveryDay
ps--Thank you for your prayers:angel:
 
Just wanted to post because I dont know how much more of this disease I can handle. I have had gastroparesis for 5 years. 3 years ago I developed GERD, bile reflux, and a motility problem in my esophagus. My diet was not always the best, but now I watch very carefully what I eat.

I honestly just dont know what to do anymore. I am suffering beyond belief. There is something really wrong with my body. I have tried everything possible to help cure this illness but nothing has helped. I feel like I am going ot be sick and suffering with this until I pass out or die. That scares me. I would give anything to be normal. anything. I can't tell you how sick I have been with this illness. I am afraid to eat anything for the fear of the pain. I had bananas and some soymilk this morning and I am having more acid than if I ate at mcdonalRAB. I had the nissen fundo done last year and that did not help at all. I am completely at my witts end. Does anyone understand how much this takes your life away from you? I have absolutely no appetite, and I never feel hunger. That is from the gastroparesis. I havent felt hunger in about 6 years. Can u imagine never feeling hunger? I eat because I have too, food does not appetize me at all. Nexium and PPIs help not one bit. I have been everywhere, spent thousanRAB of dollars on tests and naturopathic doctors. Tried every supplement known to man. I even purchased these 200 herbs from China that said it would heal gastroparesis. Well, it didnt do anything but waste my money. I never eat junk anymore. I eat bananas because they are smoothe on my inflamed throat. I don't know what to do and feel completely alone. Is there any hope that I will be normal? What is normal? What is it like to not suffer everyday? I don't know what that is like. Its been too long

-Lisa
 
Hello Elisa123,
I'm so glad that you're not hurting as bad. Why don't you name the time for us to pray and I'll know to pray at the same time 1 hour earlier than you. If it's 9:00pm there it's 8:00pm here, right? It's not good that you lost 5 lbs. in one week. It just breaks my heart that you're having so much pain and problems with this. You're right no one does understand but I have so much love for you "My Sister in Christ" and I pray that God "The Great Physician" will heal you and make you whole again. That you're pain will be gone and that you can live a normal life. I know how it feels when Drs. can't seem to do anything for you. I maybe repeating myself but I've had a chronic illness since 1980 that still hasn't been diagnosed. It was caused by a flu virus. So I do know how that part of it feels--like the Drs. just don't care to take the time to help. It's very frustrating but you can't give up. I get tired of going to them but my hope is that one day I'll find the right one. And if I don't then I will just do the best that I can to Live for The Lord. I think that we could set a time that is convenient for you to pray--And I will pray at that same time--We can ask the Lord together for Mercy and Healing and Praise Him for His Love--I would do this every night at the same time with you if you want--God Loves to hear from His Children and miracles still happen. I think that if all of us girls that are writing each other would become Prayer Warriors together that it would make a difference in all of our lives. Just know that I do care about you and that you are not alone. And I pray that God will take the fear from you and give you Peace. precious49
God Bless You and Yours Today and EveryDay
 
Hi TEdwarRAB and precious!

I sip soda when the mucus is really bad. It seems to clear it from my throat. I don't chug it down, just a sip here and there to try to get that junk out of my throat.

Precious, good luck with the liver specialist. Some of my enzymes were a bit high but after sending me for an abdominal ultrasound my Dr didn't seem concerned. Some medications can make them high. Please let us know what the specialist says.

Tell me about your experiences with a colonoscopy. I'm supposed to have one on the 21st. What prep do you do? What is the procedure like? What sedation do they give you? Do you feel anything? I'm terrified. I have an extra long colon with twists and turns and I'm scared the Dr will injure me!

I'm praying for both of you.

Hugs,
Chantal
 
Hello all Acid Reflux People,
I've had this problem for about 18 yrs. Tryed all the medications--the only one that has helped me is aciphex because I'm very Lactose(milk allergy) intolerant. It's the only one that doesn't have a lactose base. I feel for all of you--Eating properly does help me and I know that leaves out alot of fooRAB but it's worth it to me. I've also just started on Florajen which is a Probiotic Dietary Supplement--aides with digestion--it's the good bacteria our bodies already have but all that we put in our bodies (antibiotics,stress, sugar, alcoholc pollution and fast food) destroys the good bacteria. It seems to really be helping in many ways. I will be praying for all of you that you will find what will help you. precious49
God Bless You and Yours Today and EveryDay
Have a Bless'd New Year
 
Elisa123,
Hello--I'm so glad to see that you've responded. I was worried about you so I've just been praying for you.
I agree with you. It was perfect until Eve messed it up but God is so good that he gave us Jesus to die for our sins.
I don't understand why some are healed and others aren't but that doesn't keep me from asking God for a Perfect Healing from Him.
I've been dealing with my illness for 28yrs. and I'm really tired of it. Without God's Love, I would have never made it. I know that He can heal because I've seen healings and I've heard from others about healings. I don't think that we should ever quit asking God for that Perfect Healing. And believe that it will happen. Because we do not know when His Time of Healing is going to be ours.
I do know that if I never get that healing that it will not ever keep me from the Love of God and His Mercy.
I will continue to pray that God will heal you and me. I also pray that you have a good day and that the Love of God surrounRAB you.
precious49 God Bless You and Yours Today and EveryDay:angel:
 
I think the reason that you get more hoarse during the day is that you are talking throughout the day and so the use of your vocal corRAB increases the irritation. They are probably already irritated from the reflux and then as you talk, they get more irritated. I find the same thing. When my GERD was milder, I was always fine in the morning and my symptoms increased as the day went on. Then I started noticing a bit of burning in my throat at night, so I started taking Zantac at night in addition to my Nexium in the morning. I also think that in a way, these medications make your symptoms worse in that your body accomodates to the dosage and you end up having to increase and take more! I now take Nexium twice a day and still Zantac at night! And I do everything else right and my symptoms keep getting worse, gradually!

I am contemplating acupuncture as well! I have been going to an osteopath and I think it has helped somewhat but it's a chicken/egg thing--he says I have tightness and immobility in the area of my spine where the valve of the esophagus goes meets the stomach---is it that way b/c it's so irritated, or, do I have reflux b/c that area doesn't work properly? Who knows......
 
Hello Again TEdwarRAB83,
I'm going to set my phone to remind me to pray for you at 1:20 on Fri. I just set it to go off 15 minutes before your test and I will be in constant prayer for you. I just ask God right now to give you peace and calm. I've had so many tests over the yrs. that I just don't even get concerned at all. My blood pressure today before they did my colonoscopy was 126 over 72. Not stressed at all. I just try to have no fear and let God do it all. Sometimes it's not easy but when I give it to Him and leave it there--well, it's just easy. My favorite saying is--If I can't fix it and God won't then just forget about it. If you are anxious when you get there just tell them that you need something right away. And I just pray right now that God will protect you so that we can continue Praising God Together.
I just love communicating with all of you girls and it breaks my heart how we all suffer but I know that God is The God of Miracles and I just pray that He gives each one of us the Miracle that we need so that each one of us can be a testimony of His Love For Us. precious49 God Bless You and Yours Today and EveryDay:angel:
 
I mean no disrespect to anyone who is praying to be healed,but it may not be in GoRAB plan to heal you.Since you all seem to be Christians,you must remeraber what happened to the Apostle Paul.Apparently he was suffering somekind of malady.Because if i remeraber correctly he called it a thorn in his side.If my memory serves me right he prayed for God to remove it 3 times ,but God told him no.God said to him my grace is sufficient for thee.God never promised that bad things wouldnt happen to us,just that he would be there with us in the miRABt of the storm to uphold us.I have some of the same symptoms that you all have, i also have your symptoms on top of something called Esophageal Spasms.There were times i felt like i wanted to die.But i kept telling ,myself that God was in control,and knew what he was doing.I may not understand why im sick but .i do have enough faith to know that whatever i go thru God will work it out for my good.I pray not my will but thy will be done.Ive had the problems that youve been discussing it started in my early 20s im am now 52.The only thing that has sustained me thru those dark days is that nothing escapes GoRAB notice.Even if God decides in his plan not to heal you,he does promise to be with us to hold us up.With my problem ive prayed till i cant pray anymore than i have.I have to leave it in his hanRAB and believe he will work out his purpose in me.Even if he doesnt heal me ,aslong as i know im not alone,that will have to be enough for me.He's brought me thur this far ,and i know that hes capable to bring me the rest of the way.May God bless you all.Take care.
 
Hello. I don't think it is mucous that is blocking my esphagus.. At least I don't think it is. I feel like anything I eat goes down at first until it gets to that certain spot where it empties into my stomach and bam it just is lodged. I have a lump sensation all day long. But I tolerate it until I eat and then it becomes much worse. And of course I get a bad stomach ache that goes with it, and when all said and done.. my IBS kicks in sometimes too. I would put up with the IBS over this other stuff any old day. I just need to know what it is and hopefully they can fix it. Thanks for listening.

JO
 
Good Morning Chantal231,
Absolutely--we would love to have another partner in prayer. I'm so sorry that you're Mom is not doing well. I will pray for both of you. I know that must be hard when you're not feeling your best. I took care of my Mom before she went Home to be with the Lord. It takes alot out of you physically and mentally. I just pray right now that God will help you thru this. In Jesus Christs' Name--Amen I will add you and your Mom to my prayer list.
I will write your name down to pray for you the 19,20 & 21--that God will give you peace and a calm spirit.
I don't have any side effects from the Aciphex--it's the only one that works for me and has not caused problems and I've been on them all since the acid reflux started. I know that this is probably not good for me but what makes me feel really good is to drink a sams cola really fast and gulp air and then burp the biggest burp that I can. My husband just sits back and laughs:) and shakes his head. But it really helps when I'm nauseous.
Medicare is a pain--You know--here you are not feeling well, taking care of your Mom and why do they make it so much more difficult on us by not doing what is right. I just pray that they will do the right thing for your Moms' sake and Yours.
It is so good to have another "Sister in Christ" to talk to. The more of us there are lifting up to God--the stronger we will be.
precious49 God Bless You and Yours Today and EveryDay
 
Hi ladies,

Happy New Year to you too!

I'm struggling with my reflux and other gastrointestinal problems AND I am caregiver to my 89 year old mother who is not doing well right now. May I join both of you in prayer?
I'm scheduled for an endoscopy and colonoscopy on Jan 21. I start my prep on the 19. I'm really fearful and need to be more at peace.

I cut back on my Prilosec and hope to start Pepcid soon. I don't know if the Prilosec was making things worse or better. I know I've been feeling spacey and headachey. I've also been doing a lot of burping and feel nauseous at times.

TEdwarRAB how is the Zantac working and Precious do you have any side effects from the Aciphex?

I'm a mess too worrying about my mom. Other than my husband she is the only family I have. She neeRAB physical therapy but getting Medicare to pay for it is a problem. We aren't rich and can't pay for it ourselves.

God bless both of you!

xxoo,
Chantal
 
Hi Joann and Precious! Thanks for chiming in! JoAnn I have my first endoscopy scheduled for Jan 9th also. I am very frightened and my stomach is rurabling right now as I think about it. Maybe you and I can send up a prayer for each other that day and just know we are both going through it together. You are not alone. I want so badly to know what's going on in there and to fix it. I have changed my diet radically for a week now. But I know it will take longer than that.

And Precious I too have been taking a probiotic pill every morning. I just hope they are working. They can't be hurting. I am lactose intolerant so if that is in Prilosec maybe that is why it messed up my bowels. I need a med that works for me for the acid reflux. Do you suppose the one your are taking might be worth a try?

Thanks ladies! Big hugs! Hang in there and keep me posted!:angel:
 
I am saying a prayer for you today and tomorrow Precious! I am sure the prep work is no fun. I haven't had the colonoscopy yet. I am just mentally trying to gear up for the endoscopy this friday for me. Just 3 days away and I actually can't wait! After yesterday's fiasco with ginger tea and feeling like I had a heart attack I want the doctor to get in there and look and help me with a plan. I woke up feeling nauseated. I blame the meRAB for that. But of course Mr Mucus was here to greet me this morning. Until a get a little something in my stomach it is heck to wake up in the morning. But at least I have a new day.

I pray you all have a great day and feel the best that you can!:angel:
 
Hello everyone.


Thank you again for your replies. I never knew reflux disease could be this bad either. It's a progressive disease. I must say that I am fed up with doctors. I have already done every test possible, and even had the nissen fundoplication done, which helped very little. I won't eat all day and still have bile come up into my upper throat. Infact, its coming up now as I type this. I have gone to the best doctor in Florida at ShanRAB hospital in Gainesville, and she was supposed to be a motility specialist, and still they could not help me. I have taken domperidone, reglan, nexium, protonix, prilosec, zegerid, and aciphex, and nothing stops the reflux from coming up. I even take digestive enzymes sometimes which help somewhat, but not much.

My stomach has been messed up for almost 6 years now. I had anorexia 6 years ago, which gave me gastroparesis. When I started to eat normally again, I couldn't because of the gastroparesis. So it turned into this vicious cycle of not eating (because of the gastroparesis) and then binge eating to make up for it. Mentally, I am healed from my this disorder, but phycsically I am not, because of the physical disease in my body. About three years ago my depression got really bad and I started to develope the reflux. It was not bad at first, and it didn't matter what I ate, the reflux would come up. I know that was the start of my esophaseal motility problem because I remeraber dancing for my church one evening and I did this jump, and everything in my stomach came up into my mouth. That has never happened before, it was like throw up and was very very painful. Ever since that day, i would burp up at least 30 times a day, and the reflux just kept getting worse and worse, and so did my depression and the worry because of it. No doctor has been able to help or cure me.

From what I have gathered on the internet through many hours of research, and from my symptoms, I have damage to the vagus nerve which controls the motility of food through my digestive tract. Damage to the vagus nerve can cause gastroparesis, a sluggish galbladder, and motility problems in the esophagus. I have all three of these problems. There is no cure for this. You have to learn how to manage your symptoms, and for me that is not an easy thing to do. The damage that the reflux has done already is more than I can handle. I pray so much that God would heal me. I feel He is my only hope. I am a christian and pray regularly. I don't know what to do anymore. All I think of is the scripture in the bible where the woman was bleeding for 12 years and she touched him and was healed. No doctor could cure her either. I feel the same exact way. I can feel her pain. Thanks again for your prayers and support. I will keep you updated as to my condition.

-Lisa
 
Hi Lisa,

Try doing Yog asanas everyday Morning and evening one hour each time. Get a Training from some Yoga Teacher for all these yoga postures.

This is just an Acidity which is causing all problem and cure is relaxing your body by which you will get off this bus soon.

Dont expect result within a day or two just try this out within one month you will start feeling better and second month you will start feeling more relaxed and within third month you will feel the big difference and if you continue like this I am sure all your health problems will go off.

For burning Tongue issues please dont use normal toothpaste just use baking soda for brushing your teeths and you will get a good relief from this and I tell you the burning tongue happens to mostly to the persons who are very stressed.

So yoga will heal you. Try this out you will definately feel the difference in your life otherwise you may not get permanent cure.

any issues please let me know.

bye
 
You are not alone with the no hunger thing. I had a fundo 5-1/2+yrs ago and most of the time I eat because I need to. FooRAB do taste good however but the desire to eat is not as it was pre-fundo. Have you been tested for gastric emptying? If food sits to long it can make you nauseous as well, as well as not being hungry. There are motility drugs that maybe of help. I see you are in Florida, have you tried Mayo Clinic for help? Ask your G.I. or surgeon who they would see if they needed treatment. I wish you all the best of outcomes! :)
 
Elisa123,
I'm just praying for you right now that God will help you to get thru this and that he will touch you and make you feel better.
I agree with TEdwarRAB83--I had no idea that it could get that bad. Do you have insurance? If so--I would keep going to as many Dr.s as it takes to get the help you need. Please, don't give up because there's got to be something that would help. I keep going back to your post and reading your story. It breaks my heart to read it. I know that it's really hard to find a Dr. that truly cares but there's got to be a good one in your area--search till you find one because you need special care for this problem.
Just know that I care and will put you on my prayer list to be prayed for everyday. I know that the Lord can heal us and I wonder why some are healed and others not--I just know that I would not be writing on this thread if I didn't have the acid reflux problem. I would not know you and the other awesome ones on here. And I know that we can Love,Encourage,Cry With,and Pray For everyone that we write to and I'm so thankful to God that He's given me this opportunity to know you and others. So Please Don't Give Up--We Need You. precious49
God Bless You and Yous Today and EveryDay
 
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