hey Linmarie,
Your symptoms sound almost identical to mine, though your problem's starting point is higher. Mine actually starts at the junction of my hamstring and gluteal muscles right on top of the sit bone. It does not go down from there, though it doesn't sound like it goes down from there for you either....it's just that your low stopping point is my starting point. Mine only goes up from there, when it does radiate. I have the intense burning too, though sometimes it feels less like burning and more like claws digging into one concentrated spot surrounding the sit bone.
The only things recommended to me have been PT and anti-inflamm's. I've done OTC anti-inflamm's on just a couple of occasions. They did nothing. I know the prescription ones might have more results, but I refuse to take any drug on a daily basis, unless there is an end point in sight.
I didn't do the PT because working out had been my education and profession and hobby for two decades at the time it was recommended. I was familiar with PT techniques, and very familiar with muscle groups, how to balance a workout so that no muscle is overworked or underworked, how to focus on a specific area, etc.
As arrogant as docs might have thought I was, I knew there wasn't anything PT could do that I had not already done. I sure wasn't going to spend thousands on having them tell me how to work out. I don't think I know everything, but the docs weren't doing a good job of convincing me that their PT's knew more. And the PT's I know, have worked with, and worked out with, agreed with me.
I'd be very interested in knowing how the Botox goes for you if you do it. My concern is that it's just going to be like the cortisone - temporary relief, and a false sense of being healed for a few months. However, one doesn't know unless one tries it. right?
thanks for weighing in!